Borough Council hears voice of people with Motor Neurone Disease


Newcastle-under-Lyme Borough Council has agreed to adopt the motor neurone disease (MND) Charter in support of local people living with this terminal disease and their carers.

MND is a fatal, rapidly progressing disease that can leave people locked in a failing body, unable to move, talk and eventually breathe. It kills around a third of people within a year of diagnosis, and more than half within two years. There is no cure.

Unfortunately, MND is still little understood and this contributes to many people with the disease not receiving the care and support they need. The MND Charter was launched to change this.

Councillor Kyle Robinson, who proposed the adoption, said “I am delighted our council has agreed to adopt the MND Charter. It is vital that more people are aware of the needs of people with MND so those living with this devastating disease can maximise their quality of life and die with dignity”.

Chris James, Director of External Affairs for the MND Association said “The importance of the MND Charter is undeniable. We want everyone to be clear that access to the right care, in the right place, at the right time, as set out in our Charter, can transform lives.”

For further information please visit www.mndassociation.org/mndcharter

About cllrkylerobinson

Newcastle Borough Councillor and Kidsgrove Town Councillor for the Butt Lane Ward. Please visit my blog www.cllrkylerobinson.com Twitter @kyle_robinson22

Posted on October 4, 2017, in News, Uncategorized and tagged , , , , , , , , , , , , , , , . Bookmark the permalink. 1 Comment.

  1. My father had ALS (amyotrophic lateral sclerosis) for 3 years His first symptoms were weakness in his hands and losing his balance which led to stumbling and falling. He never lost the ability to swallow or breathe. His one hand, then his legs, were affected first; then his arms. The Rilutek (riluzole) did very little to help him. The medical team did even less. His decline was rapid and devastating. The psychological support from the medical centre was non-existent and if it were not for the sensitive care and attention of his primary physician, he would have died . There has been little if any progress in finding a cure or reliable treatment. So this year his primary physician suggested we started him on Natural Herbal Gardens ALS Herbal mixture which eased his anxiety a bit,We ordered their ALS herbal treatment after reading alot of positive reviews, i am happy to report this ALS herbal treatment reversed my dad condition. His quality of life has greatly improved and every one of his symptoms including difficulty in walking and slurred speech are gone.

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